Rachel
Tell us about your diagnosis?
I was diagnosed with POTS in April 2023 after having a long battle with COVID.
What do you like about the program?
I love everything about this program! Aside from the amazing therapists, the program works! I love that I have a daily workout routine to do with guidance for safe and proper techniques. I have noticed a big difference in my energy level, my endurance and my overall strength since I started the program. I also love that I have an app at my hands for ease of scheduling, exercises to follow and direct contact to my team.
What would you say to someone looking to start the program?
Don’t hesitate! It’s tough at first and it’s hard to get started but once you start exercising everyday with the provided exercise protocol, you will start noticing small differences that eventually become big ones. I used to have trouble just walking to the bathroom without feeling like I was going to pass now. Now, I can work an eight hour day without significant symptoms the next day. It’s really been helping me a lot. I highly recommend!
Lauren
Tell us about your diagnosis?
It has taken me about 14 years to get a true diagnosis. Up until working with Kelsey, I truly felt that I was just meant to live in a constant state of pain, fog, and exhaustion.
What do you like about the program?
This program is extremely easy to follow, simple to implement, and catered directly towards you. In past experiences, there were many “one size fits all” programs, or routes taken that never seemed to fit my own personal needs, which as expected, never truly worked or helped me feel better. Nothing feels better than being validated, having direct changes made based on each visit, and never having to deal with the run around, or only getting a quick ten minutes to meet with a doctor or health professional. Kelsey truly cares.
What would you say to someone looking to start the program?
Don’t wait another second! It is amazing how great you can feel when starting out the programs, and realizing as time goes on that it is not okay to continue on feeling the way that you do. Kelsey validates your thoughts and knows from experience exactly how you feel. It is so reassuring to finally have someone who understands POTS working side by side with you, with this program you will never be alone again!
Harper
Tell us about your diagnosis?
My daughter has been diagnosed with POTS, gastroparesis, IBS, among other things.
What do you like about the program?
I like the accountability and support that my daughter is given.
What would you say to someone looking to start the program?
I would tell them to give it a try esp if all the medications are not helping you feel better. What do you have to loose? My daughter seems leaps and bounds better to me. Her face has life in it again and she’s taking accountability for improving her health by committing to the program. Kelsey has been a huge support for my daughter! We have been incredibly happy with the program.
Kelley
Tell us about your diagnosis?
I have POTS and possible MCAS
What do you like about the program?
The exercises are graded perfectly to fit my abilities, and takes the medication that I’m on into account!
What would you say to someone looking to start the program?
If you have POTS, you NEED to try this program!
Olivia
Tell us about your diagnosis?
I began developing symptoms of POTS a couple months after recovering from covid. After months of laying on the couch and feeling exhausted, I was able to get a tilt table test & a diagnosis at the Cleveland Clinic.
What do you like about the program?
I like that the program starts out slow and really builds your tolerance again to exercise. If you feel like something is too difficult or makes you symptomatic, Kelsey works to make it right for you!
What would you say to someone looking to start the program?
Just go for it and trust the process. It may seem silly at first starting with very simple exercises, but I have already seen a difference in just a couple months! Be consistent and stick with it.
Tracy
Tell us about your diagnosis?
It started off insidiously over years, but started to quickly progress to daily symptoms.
What do you like about the program?
The program gives me hope for improvement and healing; I feel blessed to have found it! Unable to exercise before, this program provides improving cardio and strength with exercises I am actually able to do. I love the way the program is clearly structured and starts slow building up as you get stronger.
What would you say to someone looking to start the program?
I highly recommend it. It can be life changing for people who are living with this disease, a true oasis in the desert!
Kendyl
Tell us about your diagnosis?
I began developing symptoms of POTS a couple months after recovering from covid. After months of laying on the couch and feeling exhausted, I was able to get a tilt table test & a diagnosis at the Cleveland Clinic.
What do you like about the program?
I like that the program starts out slow and really builds your tolerance again to exercise. If you feel like something is too difficult or makes you symptomatic, Kelsey works to make it right for you!
What would you say to someone looking to start the program?
Just go for it and trust the process. It may seem silly at first starting with very simple exercises, but I have already seen a difference in just a couple months! Be consistent and stick with it.
Sophia
Tell us about your diagnosis?
I first noticed my POTS symptoms in early high school, but didn’t receive a diagnosis until I was 22. My POTS was under control for years but the stress of school made things harder to handle.
What do you like about the program?
Kelsey has been a lifesaver!! I was going to the gym 5 days per week but I was stuck in a constant cycle of flares for months. Kelsey showed me the importance of going slow and steady. My POTS is significantly better. Although I have ups and downs, I feel like I am back to a sense of normalcy.
What would you say to someone looking to start the program?
Please just give it a try. Medications are not a cure for POTS and will work significantly better when accompanied by exercise. Not all exercise is the same for POTS and Kelsey will work with you to get your blood flowing in the right way :) It is also so wonderful to work with someone who understands your diagnosis because she has been through it herself
Crystal
Tell us about your diagnosis?
I've been diagnosed for 14 years and it's always been a struggle. I could barely walk out to the car or to get the mail. My symptoms are always changing so it has been difficult to manage.
What do you like about the program?
I enjoy how it pushes you but at a manageable pace. The goal isn't to make you feel like death after your exercises, but to do it at a pace where you don't. It's a realistic program with achievable goals.
What would you say to someone looking to start the program?
Just do it. You won't regret it. It'll help you achieve the little goals that seem impossible.
Annie
Tell us about your diagnosis?
I was referred by my doctor to cardiac rehab for POTS and I knew I wouldn't make it doing 3 days a week on a treadmill. I was wiped after 10 minutes on a bike. I did some research and found Kelsey and felt comfortable from our first conversation.
What do you like about the program?
I appreciate that it is realistic. I can flex to fit in 3 days a week of biking even in my busiest weeks. I've been sick several times during the program and Kelsey has helped me to readjust and get back on track. And I do appreciate that I can do it from home. In my early days I was just barely getting around my house so going to a gym even a hospital to do cardiac rehab was out of the question.
What would you say to someone looking to start the program?
Don't get discouraged. You are going to get sick or have flares. But if you pay attention you will see improvement. I am able to do more without having to worry that I will spend the next week in bed. I am having less adrenaline surges and sleeping better. You will learn what works for you along the way and gain valuable insights from Kelsey who has been through this herself. I can't express how much it helped to actually have someone who knew what I was talking about when I brought up symptoms or concerns.
Arielle
Tell us about your diagnosis?
I was diagnosed at 12 because I was fainting every day . There were no specialists near me so I was treated by doctors who were just trying their best, but were not exactly sure how to treat my condition once I failed the first round of drugs. I am now 19, I have three more diagnoses related to my pots ,and I see a specialist and I am fainting maybe once every few months.
What do you like about the program?
I like this program because of the way that it can be easily modified.
What would you say to someone looking to start the program?
I would say that it is ok if you have to backtrack in the program a little bit because of a slide in your health. The most important thing is to keep working through the program. It’s going to be difficult at times and exhausting but it makes all the difference if you stick to it.
Nicole
Tell us about your diagnosis?
Had covid in November of 2021 and started getting pot symptoms in January of 2021. I was sent to neurology, rheumatology, long covid clinic, endocrinologist, physical therapy and a cardiologist. I went and got a second opinion with a different cardiologist and he told me I have POTS.
What do you like about the program?
I really like how each week builds on the recumbent bike then just starting at however long. I also like how you have real life experience with POTS.
What would you say to someone looking to start the program?
It definitely is worth it. It seems very intimidating at first however, it is so worth it. Each week i've noticed my heart rate is slowly improving which is great.
Nicole
Tell us about your diagnosis?
I got diagnosed a couple of years ago. It took doctors a year to finally give me my diagnosis.
What do you like about the program?
I love having someone that understands what I am going through.
What would you say to someone looking to start the program?
I would definitely recommend giving it a try. I think it has helped me to feel better.